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Cystic Fibrosis New South Wales

Contact

Mrs Emma Fenton
Phone: (02) 9878 2075
Fax: (02) 9878 4890
Email: emma@cysticfibrosisnsw.org.au
Website: www.cysticfibrosis.org.au/nsw/

Address

51 Wicks Road
NORTH RYDE NSW 2113

Postal Address

PO Box 149
NORTH RYDE NSW 1670

To improve the quality of life for people with CF and their carers.

The Intent of Cystic Fibrosis New South Wales:

We provide a home visiting support service, which includes a range of counselling services as well as practical support and treatment in the home to lighten the load of families caring for a child or young person with CF. We have a Peer Support Program and a Country Outreach service. We provide a range of information services and seek to raise the level of public awareness of Cystic Fibrosis.

 

We raise funds for research, which we direct to the Australian Cystic Fibrosis Research Trust.

 

We advocate for the CF community by lobbying with all levels of government for improved services and benefits and we also provide advocacy support on an individual basis.

Recent Accomplishments of Cystic Fibrosis New South Wales:

We are dedicated to achieving the best possible care and quality of life for people with Cystic Fibrosis and their carers, now and in the future. 

 

We work mainly to requirements under Corporations Law and the NSW Charitable Fundraising Act 1991.

 

We are accountable to our members and those who use our services, our donors and supporters, and to government departments for specific service programs. 

 

In everything we do we are guided by the following principles:

 

We:

 


    • act responsibly and with integrity

    • listen to the people we serve and respond to their needs

    • strive to attain best practice

    • promote continual learning and imparting of knowledge

    Participation in Cystic Fibrosis New South Wales:

    The group is open for everyone to join or participate in.

    Meeting Venue:

    The venue is wheelchair accessible.

    Meeting Times:

    Annually at our AGM

    Membership Fees:

    $30 per person per annum